Wow, hearing all the stories about heat waves and draught all around us, I was starting to feel quite depressed with all the rain that has been falling out of the sky in our area. Rain, rain, rain, in crazy amounts, seemingly endless. I know I am blessed to be working in the educational sector; I do get time to spend with my family in the summer months. This year however was lacking the much needed amount of sunlight necessary to recharge the battery and get ready for the new school year to begin. Not just for me, for the kids as well, specially my daughter, she needs those summers!
Trying to escape the grey rainy wetness we decided to combine duties with pleasure. My girl was due for another IV treatment, so a road trip was in the picture anyways. My husband and son joined us for this trip to Calgary and after treatment was done, we went to go shopping in a new mall, went out for supper and spend the night in a hotel. After supper the kids went for a swim in the hotel and went to bed after that. We had a few rainy moments that day, but not too bad! The next morning we enjoyed a great breakfast and off to Calaway Park (amusement park) we went. The weather behaved and we had a fantastic day. At the end of the day we drove back home, only to enjoy a sleep in our own beds for a night, for the next morning we packed our little holiday trailer and went camping for a couple of nights.
We only had one thunder storm during our trip (what cost us the awning of our trailer, but oh well!) and the rest of the time the weather was gorgeous! Amazing what a bit of sunlight can do for ones’ mind and body! Have a painful sunburn, but boy is it worth it!
My girl’s treatment went well and it seems like we just have to keep going with this for a bit. Her rheumatologist examined her and still found swelling in her ankle, but overall was not unhappy. She informed us that one of the two options she planned for future treatment was denied by the insurance company (this drug is not commonly used with children and therefore they won’t cover the cost for it until she is 18). The next step is that she is going to apply for the other option, using a compassionate program, (this drug is also not commonly used with children) so this case will be individually evaluated, meaning, they will be looking at the course the disease has taken and how other treatment so far has failed. Keeping my fingers crossed for this one.
Despite the few marvelous days we had, Arthritis was still there and I was a little sad to see how a few days of fun can cost my daughter so much energy and cause her pain. But, now we all have had our batteries recharged for a bit, whether physically or mentally ( or both!) we can all deal with it a little better again! A new mattress for both my girl and my boy helps too; “Mom, I had a heavenly sleep”!
Next up; dentist next week, ophthalmology appointment in 3 weeks and another treatment the day after that. Decreasing the prednisone by 1 mg again, keeping fingers crossed that we’re not experiencing another flare!
Oh, and Sun, please stick around for a bit, I have missed you and I enjoy your company!
The beautiful art on this post was made by my daughter as a gift for her doc! I love her art, so bright and colorful!