Okay, how did we end up in November all of a sudden?
Life seems to just happen and free time is a scarce good! So much has happened since my last post! Mostly good though! It’s so nice to be able to live life for a couple of months without really having to worry about my daughter’s health. That’s a great feeling and I could get used to it easily!
Since my last post, my son has grown just about 3 inches. My little man is growing up too and there is no denying it. He is loving sports and is developing some great leadership skills on the volleyball court, soon to change in to basketball! He decided this year he wants to play all the sports the school is offering. I’m so proud of him and so happy that sports come so natural to him, it is a great way for him to express himself.
My husband is busier than ever and for me a new school year has started too. I’m working in an elementary school, helping special needs students reach their fullest potential, help them be successful, independent and hopefully see them grow in to valuable, contributing members of our society. I love this job, it’s not everybody’s cup of tea, but it is mine! This year has been a true challenge so far, but that’s exactly what I like, so it’s all good!
My girl….wow, where do I start? I don’t want to jinx it but she has been doing FANTASTIC! I’m so over the moon that this drug she is on now ( humira) is giving her the opportunity to truly blossom. She is such a wonderful young lady with great spunk and a zest for life, it bubbles out of her and is quite contagious! We went for a checkup with her rheumatologist in October and all her joints are clean,for the first time in a very long time! we have successfully weaned her off of prednisone and if she stays this “good” we might be able to wean more drugs when she has her next check, which is planned for February. Yes; she is a terrible teen at times, but secretly I love it! ( have to admit I do recognize myself in her, but shhh, don’t tell her!)
|see the mischief in her eyes?|
Her transition to the big high school in town went smoothly and has opened lots of doors for her. New opportunities, new friends, and yes: even a boy friend (a really nice guy, so it seems!). So happy for her she has the energy to enjoy this new stage of her life full throttle, nothing is really going to be able to stop her now!
The one scary thing that is lurking somewhere over our heads is the fact that her doc is talking about transitioning to an adult rheumatologist when she is about 17…. She’s almost 16 now so it is creeping up. b I don’t want to let go of this wonderful lady who has meant so much to us and has been there for all the hurdles my girl has had to tackle. Makes me sad this woman can not be part of the rest of our lives.
For now, we appreciate the care we are receiving and what tomorrow brings is always a surprise!
For now we enjoy our new normal, what the future holds; only time will tell!