December is less than a week away. Quite some time has passed since my last blog post. A lot has happened too, which is probably why it took so long to update.
My son has had a clinic visit in October, not a lot has changed.
His fingers look bad, I try not to stare at them every time I see them, but sometimes I can’t help myself.
A couple of weeks ago we were discussing the institute of marriage and how people usually exchange rings to show their commitment. My son was wondering how he was ever going to be able to find a ring that would go over his knuckles without it looking like a bracelet around his finger…the things you worry about.
Still many drugs…slowly we are trying to wean him from prednisone but we have a long way to go yet. Enbrel is his new weekly routine, he seems to be used to it, but I’m not sure if I see results yet. We shall be patience and see!
He had the opportunity to play volleyball with the seniors team of his high school this season. Being a rooky and being the only grade 10 boy, he did not have that much play time, but he trained hard, played some games and had a fantastic time with his team and his coach. The whole team showed fantastic effort and great dedication, and completely unexpected ( for most of their opponents) they team became zone’s champions and they got to represent their school at provincial championships. I’m pretty proud of the entire team and thankful he did get this opportunity. It did show him that; yes, his arthritis is hindering him but will not stop him from doing what he loves. Now on to basketball, try –outs are on their way. Here’s to hoping his knees and fingers will be cooperating and he can enjoy a great season.
Both my son and my daughter had an ophthalmology appointment the beginning of November. Thankfully they both had no issues, and since my daughter is no longer using plaquenil, and my son doesn’t need to be seen more than once a year, we are good to go for the next couple of months!
Today my daughter and I made a trip to the Children’s Hospital again. Bittersweet, because it was her last official visit there, before her transition to adult care.
|Last time walking these halls as a patient for my daughter.|
She is doing fantastic, no inflammation to be found, her back is doing much better, and another med is discontinued, good stuff! All she takes now is one shot of humira every other week…what a way we have come since she started her journey with Arthritis, 10 years ago….
She’s working so hard and making me so proud. She has been conditionally accepted to the college of her choice, enrolled in the education program. She has her school, her job, her social life, and what most people don’t realize is that she has to work twice as hard as anyone else. She does it with grace and most days with a smile on her face, no matter what obstacles she encounters! ( Like almost rolling her vehicle and now having to drive with mom again...)
My “little” girl is as tough as they come, with all of her 156 centimeters and her 41 kilograms. She picked out her graduation dress already, it’s pretty stunning, but it will have to be altered!
I’m very excited for her to start the next chapter of her life, I’m sure she is going to embrace it with open arms and give it her all…..just not sure if momma bear is ready for it yet!