Thursday, January 28, 2016

Piecing the Puzzle

It’s getting old, I have to admit.
My son and I went for another check up with his rhuematolgist yesterday, to see where we were at and to find out whether or not the changes made to his drugs regimen have made a difference in his overall well being. You would think that after dealing with this disease for 10+ years things would get easier, but just when you think you’ve got this arthritis thing figured out, boom, here’s another plot twist you haven’t dealt with before.



At home we haven’t seen a lot of improvement when it comes to him feeling well. Despite the relaxing Christmas break he is still missing a lot of school and he really cant afford that at the moment.

It’s like a complicated puzzle that we are trying to figure out. So many components and so many different ways to approach it, but so far we haven’t solved it yet!
I have to give big credits to our wonderful doc. I know it is her job, but she goes above and beyond to push, puzzle,figure out, pull strings and think outside the box to help us make my guy’s life easier when it comes to getting him well. Today she phoned me at home at about 7.30 pm, just to follow up with something we had discussed yesterday. I so appreciate her.

To summarize: he has a virus plaguing him. The virus makes him feel sick. It is bearable but when he has to take his Methotrexate he gets so sick he can’t function for at least a day (Enbrel goes better, but is also bugging him). For this reason some other drugs where also discontinued. He has had two rounds of heavy antibiotics to try and get rid of the virus, but they were not successful, he still is testing positive for it. Now the doc has decided to discontinue MTX as well, to see if he will feel a bit better or at least does not have to miss that much school. He is referred to a G.I. specialist to try and get to the bottom of his stomach problems.The waiting time is 4-6 months. In the mean time we will try one more round of slightly different antibiotics to hopefully come one step closer to kicking this virus to the curb. In the mean time, this path he has to take is compromising his arthritis treatment. His joints have definitely been worse, but they are not great either at the moment. So….long way from being where we want him to be.

He is getting frustrated and understandably so. He’s 17. He wants to hang out with friends, be normal, not having to feel sick and not always having to take medication. Here is to hoping we can soon turn a corner and things are getting a bit easier for him.

And they girl child you may ask? She is doing wonderful! It’s wonderful to see her doing her thing!



1 comment:

  1. I was diagnose with seronegative arthritis.My fingers were very bad, I find it hard to do normal everyday, I started having pain in my lower back in May 2010. I had X-rays taken at two different hospitals. I was told by both doctors that they can’t see anything wrong. But my back kept getting bad to worse. I took number of treatments, I didn’t get much better. And my legs started getting colder.Now i can't still believe my self really cured from the sickness, oh by this time last year I start feeling bad about my life, I feel pain everyday of my life am very happy now that am really cured I couldn't have do this on my own I wish is not God that help me with my helper I was searching the internet about this sickness last 3 month when I found about this great doctor Ighodalo, the man that keep his words I wrote the man email about my problem immediately I get a reply from him telling me the steps and necessary things i need to do, i was doubting at the first time if it will work out but when i decide to give it a try, i found my self getting much better and i was cured. Am really happy now with my family you can also get your self cured too from this sickness by contact him through his email: dr.ighodalocuringhome@gmail.com

    ReplyDelete