Friday, June 3, 2011

counting down till Summer...

     It’s been a while since the last update. Life this time of the year just seems to be hectic and busy. We can see the finish line for this school year, but before we cross that finish line, we have a bunch of hurdles to tackle!
Despite the fact this was most definitely the year with the most doctor visits we have had so far, it was also the year where my daughter has seen the most effect from all the effort she puts in to keep living with her Arthritis manageable. She seems to have turned a switch in her head and decided that she cannot let Arthritis define who she is and how she lives her life.

     She is done her TB treatment; 2 pills less each day! We are also weaning her off of prednisone….that is where I am having some mixed feelings. On the one hand, I am excited about the fact that finally after more than 1.5 year she is pretty close to being “steroid free”. (Still need probably 6 more months before we are done the tapering.) On the other hand, every time we hit a certain number, she starts flaring again.  Even though I believe the Enbrel is working wonders, we are experiencing flares again….sigh.

     Just a week after her last IV, she complained about stiff ankles. A day later there was a swollen ankle that stuck around for 4 days…..not happy about that. Will have to bring that up with our next visit.
     Like I said, we have a busy time ahead of us, a good kind of busy, but never the less; BUSY. I’m worried this will cause more problems. We have some camping trips coming up , a busy school month and most weekends packed with activities. On the other hand, Summer coming up so many opportunities to get some extra rest in.

     In the mean time; staying positive and focus on what is going well. Like I stated in the beginning of this post; this year was a good year for my girl. I just wish she would stop growing up so fast.

No comments:

Post a Comment