Saturday, March 24, 2012

Joint Forces part two!

     Well, our run was a success! My girl held a great presentation and we walked the school grounds in the snow. I had anticipated some long faces from the junior high students but I have seen none of that! Walking in the snow was kind of a nice metaphor; yes, plowing through the snow may take some effort, but then again, living with arthritis always takes effort. It was great to see our little friend, who suffers from JA as well, came out with her family. The driving conditions were not great at all so it was truly appreciated! 

      The students were all great sports and I believe my girl is excited to get her point across and gained a better understanding from her peers.

     The health reporter, Su-Ling Goh, from the local television station, Global Edmonton, came and interviewed us. She wrote a great little piece and it was aired that same day on the six o’clock news. I truly believe we have done a pretty decent job in generating some awareness and we raised a fair amount of dollars too. Here’s to hoping the first step towards reaching our goal has been set and wheels are set in motion.

Here is a link to the footage that was shown on the news. http://www.globaltvedmonton.com/video/juvenile+arthritis/video.html?v=2213977900&p=1&s=dd#video   

     On a medical note, my girl is doing pretty good at the moment. Her eyes were clear, that is always a huge relief. Next check by her doc is booked for the beginning of April. We need to get some blood work done before that. I have good hopes that Dr. J is going to be very pleased with how things are progressing. I am even thinking we could get the green light were it comes to discontinuing Prednisone….not saying that out loud though, I might be jinxing it!



Tuesday, March 6, 2012

Juvenile Arthritis Awareness month, let's Join Forces!

     March is here.
Eyes were checked and found all clear so that’s great to start the month off with.
  
     March is Juvenile Arthritis awareness month. So…time to raise some awareness! My daughter and I are organizing a run/walk at her school. I’m excited a little country school is willing to step up and help host this event. We have a great little community and I’m proud to be living here.

     My daughter is working on a power point presentation to show during an assembly, shirts are being printed, pledge sheets are printed, prizes are on their way, on line fundraising page is up (will post the link ) and all the pieces are starting to fall into place.

     Also have some media attention, a representative from Global Edmonton is planning on coming out and do a little piece my daughter, Juvenile Arthritis, and our run. Exciting and hoping it will happen because every opportunity I have to make a few more people aware of what JA is all about, I will take!

     I’ll keep you posted and if you are able, please come join us March 22. If you can’t join us, maybe take this opportunity to show your support and sponsor our run!


Check out the link!